Author Topic: Thoughts on this  (Read 15145 times)

momfellinglost

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Thoughts on this
« on: January 20, 2020, 08:52:38 pm »

 My oldest son is in hospital with an infection in his foot from a blister. He is diabetic(insulin dependant). He is bi-polar and has spent 24 hrs in the ER. He didn't think he would be there that long so didn't take all his meds with him. The attending canceled his meds for his bi-polar and the hospital told him to get them from home after they admitted him. I could live with that if they had someone who could bring them down. I live out of town and currently don't have a way to get to him. His girlfriend dosen't drive and buses in the city they live in stop at 11. So it was after his gf left to go home and as they are poor there is no money to take taxi back to the hospital. His gf found someone who could do it after searching. He has been stable for years on his meds and takes them on time everytime. It might not be such a big deal as they did find someone but my problem is what about someone who has no one who could do this? The nerve of an attending to just say nope we will not give you the meds find a way to get yours from home seems  cruel and makes a joke of telling people that meds can help them if they have a mental illness and excessive stress while already sick and being in the hospital.  Wondering if he should report this to the hospital? He knows I will advocate for him if he needs it but wants at his age 39 to look after himself and advocate for himself. I am angry that he is being treated this way by a health team who is supposed to look after his well being and treating him with less respect because they know he is on ODSP (doc ask) not sure why it mattered. He has worked hard to look after himself his health both physical and mental and to get treated like a second class of person hurts both him and me as well. Thoughts suggestions on dealing with this.

paulm

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Re: Thoughts on this
« Reply #1 on: January 21, 2020, 10:31:00 pm »
Hello Momfeelinglost. I don't have any good suggestions. You can try looking up patient relations for that hospital and how to make a complaint. I haven't had much luck complaining about treatment that I have received. I have had some small victories). I can only hope that my complaints will make a difference in the future. Plus sometimes it just feels good to write  a carefully worded letter even if it doesn't resolve the problem. 

 Having a doctor judge people is unfair and doesn't help anyone. I wish your son and you the best of luck, Take Care. paul m

momfellinglost

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Re: Thoughts on this
« Reply #2 on: January 29, 2020, 08:46:54 am »
 Thanks for the reply. We got his meds to him and he is now home with one less toe and they are still watching two other toes. I can only hope that the care after will be ok. No home care he has to go to them but we are working on the positive side he is home yah.

Pleeb

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Re: Thoughts on this
« Reply #3 on: February 03, 2020, 02:45:59 am »
Mom, I wish you luck on this too.  Must be difficult!

Take care.....  Peter

sarahruth

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Re: Thoughts on this
« Reply #4 on: February 04, 2020, 09:57:47 am »
Wow tough issues.
My 22 year old is type 1 diabetic too.
Its so hard to step aside as a parent when they get old.
His dad has mental illness and I am stressed so he has learned to take care of himself.
Take care.

Pleeb

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Re: Thoughts on this
« Reply #5 on: February 05, 2020, 03:53:08 am »
sarahruth, welcome, if you haven't been welcome already.

You have tough issues also.


Peter

Pleeb

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Re: Thoughts on this
« Reply #6 on: March 01, 2020, 01:45:54 am »
Mom, sararuth, let us know when you have updates.

Peter

momfellinglost

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Re: Thoughts on this
« Reply #7 on: March 04, 2020, 11:53:30 am »
 My son is now home less one toe and still two more in danger. While he is doing well going by bus to get dressings changed while having an open wound has been a concern. As I said he is on ODSP so money is always tight. Keeping my fingers crossed that nothing else happens going forward. I just don't understand why they need to take such a hard line for things that matter. Yes he is a grown 6 ft adult who outwardly looks just fine. The things that go on inside his head and the struggles he still has can't been seen by the naked eye. We just can't let supports fall threw the cracks and while I will always advocate for him when needed, I am getting older and have my own health concerns so can't do what I did when I was well. Sorry for the rant. But sometimes we all need a safe place to just let it out. This is one of the only place I can count on. Thanks to all who responded know that I value each and every one of you who took the time to read and or respond it makes me feel less alone

paulm

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Re: Thoughts on this
« Reply #8 on: March 04, 2020, 11:07:34 pm »
Hello Momfeelinglost.  Rant all you like.No need to apologize. The system sucks.  I was lucky and I was able to collect CPPD while my wife worked.(minimum wage). I have no idea on how families make ends meet on ODSP. They should be given a medal, not problems or comments . Take Care. paul m

Pleeb

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Re: Thoughts on this
« Reply #9 on: March 12, 2020, 02:08:13 am »
Mom, you're not ranting at all.

Quote
This is one of the only place I can count on.
  Mom, we appreciate you....and appreciate our forum.


Peter

I wish you could instant message people on there...